The Genetic and Rare Diseases (GARD) Information Center is a program of the National Center for Advancing Translational Sciences (NCATS) and funded by two parts of the National Institutes of Health (NIH): NCATS and the National Human Genome Research Institute (NHGRI). GARD provides the public with access to current, reliable, and easy to understand information about rare or genetic diseases in English or Spanish.
Each rare or genetic disease has its own web page that includes: questions answered by GARD Information Specialists; links to resources where you can find more information; information about genetic testing and genetic services; scientific conferences that have been sponsored by NIH; organizations that provide information and support; information about research studies and clinical trials; and FDA-approved medications for rare diseases.
Genetic and Rare Diseases Information Center (GARD): http://1.usa.gov/1RMFzRq
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