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Midwest Matters September 20th, 2020
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A Library-based Data Retrieval and Management Training Program for Clinical Researchers

Posted by on June 3rd, 2020 Posted in: From the GMR, Funding, News from the Region, Outreach


 

The GMR office is happy to announce funding for the Galter Health Sciences Library at Northwestern University via our Health Information Outreach award:

Description:  This project endeavors to create an end-to-end training program that introduces clinical researchers to clinical database architecture and clinical coding standards, teaches them how to translate their research questions into queries that will allow them to extract data properly, and how to do so in a way that supports transparency and reproducibility while still respecting guidelines for proper data sharing.

They will promote improved communication and collaboration between data analysts and clinical researchers to make them better partners in research projects. To promote reusability of research reports and database queries within Northwestern’s research community, they will provide workflows for preservation through our next-generation research data management (RDM) system to make these resources discoverable.

They hope to bolster support for our local research community to use clinical research data from the Northwestern Medicine Enterprise Data Warehouses and also parlay this experience to develop a blueprint of best practice workflows for clinical research data education and training that could be applied in libraries at other institutions.

Objectives: 1) Create an end-to-end Clinical Data Retrieval and Management Program for researchers that teaches them how clinical data is collected, stored, and retrieved, how to identify their research population of interest, how to create practical data retrieval workflows for their clinical research projects, and best practices for ensuring that the research reports for these projects are reproducible and reusable. 2) Promote improved communication and collaboration between data analysts and clinical researchers to make them better partners in research projects. 3) Enhance reusability of clinical reports and database queries by creating workflows and training for preserving them in our next-generation research data management system and making them discoverable to Northwestern’s research community. 4) Build a template for clinical research data education and training for other institutions based on the results of this project.

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This project has been funded in whole or in part with Federal funds from the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Grant Number 1UG4LM012346 with The University of Iowa.

NNLM and NETWORK OF THE NATIONAL LIBRARY OF MEDICINE are service marks of the US Department of Health and Human Services | Copyright | Download PDF Reader