[Skip to Content]
Visit us on Facebook Visit us on YouTube Visit us on Twitter View our RSS Feed
Latitudes May 27th, 2018
CategoriesCategoriesCategories Contact UsContact Us ArchivesArchives Region/OfficeRegion SearchSearch

Nov

29

Date prong graphic

NIH’s All of Us Research Program Partners with NNLM to Reach Target Communities Through Local Public Libraries

Posted by on November 29th, 2017 Posted in: All of Us, Announcements, Consumer Health, Data, Funding, Outreach, Precision Medicine, Public Health


diverse group of people with the All of Us Research Program logo and tagline, “The future of health begins with you.

The NIH All of Us Research Program and the National Library of Medicine (NLM) have teamed up to raise awareness about the program, a landmark effort to advance precision medicine. Through this collaboration, the National Network of Libraries of Medicine (NNLM) has received a $4.5 million award to support community engagement efforts by public libraries across the United States and to improve participant access. According to Eric Dishman, director of the All of Us Research Program: “We want to reach participants where they are. For many people in the country, including those with limited internet access, one of those places is the local library. We’re excited to work with the National Library of Medicine to make more people aware of All of Us and the opportunity to take part.”

The partnership is a three-year pilot program, running through April, 2020. Program objectives include:

  • To increase the capacity of public library staff to improve health literacy.
  • To equip public libraries with information about the All of Us Research Program to share with their local communities.
  • To assess the potential impact of libraries on participant enrollment and retention.
  • To highlight public libraries as a technology resource that participants can use to engage with the program, particularly those in underserved communities affected by the digital divide.
  • To establish an online platform for education and training about All of Us and precision medicine, with resources for members of the public, health professionals, librarians and researchers.
  • To help identify best practices in messaging and outreach that lead to increased public interest and engagement in the program.

NNLM’s specific activities in the partnership include:

  • Connecting Network members with public libraries to develop effective and innovative, replicable approaches to meet health information needs communities, including raising awareness of the All of Us program.
  • Providing responsive and tailored value-added services for public libraries and public library staff, such as health information credentialing, resources for programming, and funding opportunities.
  • Leveraging the local public library as a convener for local All of Us partners and stakeholders.
  • The NNLM All of Us Training Center is focused on engaging program participants and other interested parties in management of their personal health data.

The All of Us Research Program aims to build one of the largest, most diverse datasets of its kind for health research, with one million or more volunteers nationwide who will sign up to share their information over time. Researchers will be able to access participants’ de-identified information for a variety of studies to learn more about the biological, behavioral and environmental factors that influence health and disease. Their findings may lead to more individualized health care approaches in the future.

Amanda J. Wilson, head of NLM’s National Network Coordinating Office (NNCO), and Dara Richardson-Heron, M.D., chief engagement officer of the All of Us Research Program, will lead the new partnership. Each NNLM region’s funding includes one FTE for an All of Us Point of Contact. Kelli Ham, formerly NNLM PSR Consumer Health Librarian, will fill the role in the Pacific Southwest Region. Her new title will be Community Engagement Librarian. Over the course of the pilot program, Kelli will focus her outreach efforts on various designated target geographic areas in the region, beginning with Sacramento, CA.

The All of Us Research Program is currently in beta testing. To learn more, sign up to receive updates. Precision Medicine Initiative, All of Usthe All of Us logo, and “The Future of Health Begins with You” are service marks of the U.S. Department of Health and Human Services.

Image of the author ABOUT Alan Carr
Alan Carr is the Associate Director, National Network of Libraries of Medicine, Pacific Southwest Region, based at UCLA.

Email author View all posts by

Contact Us

NNLM Pacific Southwest Region
12-077 Center for the Health Sciences
Box 951798
Los Angeles, CA 90095-1798
Phone: (310) 825-1200
Email: psr-nnlm@library.ucla.edu

Stay Connected

Read the Latitudes newsletter
Keep up with NewsBits blog
Join the PSR-News announcement list
Like us on Facebook
Follow us on Twitter

This project is funded by the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Cooperative Agreement Number UG4LM012341 with the UCLA Louise M. Darling Biomedical Library.

NNLM and NATIONAL NETWORK OF LIBRARIES OF MEDICINE are service marks of the US Department of Health and Human Services | Copyright | Download PDF Reader