[Skip to Content]
Visit us on Facebook Visit us on FacebookVisit us on YouTube Visit us on YouTubeVisit us on Twitter Visit us on TwitterVisit our RSS Feed View our RSS Feed
NewsBits May 17th, 2022
CategoriesCategoriesCategories Contact UsContact Us ArchivesArchives Region/OfficeRegion SearchSearch

Oct

26

Date prong graphic

New Resource from the EDM Forum: A Framework for Patient and Consumer Engagement in Evidence Generation

Posted by on October 26th, 2012 Posted in: Consumer Health, Non-NLM Resources, Public Health


Increasing evidence suggests that there are benefits to actively involving patients and consumers in their health care. There is also growing interest in engaging patients and consumers more actively in the research process. Comparative effectiveness research (CER), patient-centered outcomes research (PCOR), and quality improvement (QI) all offer opportunities to engage patients in generating information that can be used to inform treatment decisions. A new seven-page resource, based on work conducted by AcademyHealth under the auspices of the Electronic Data Methods (EDM) Forum, and developed in coordination with patients, consumers, and health services researchers, outlines key opportunities for engagement in research, and proposes a set of activities to enable patients and consumers to become more active participants in the process of evidence generation. A Framework for Patient and Consumer Engagement in Evidence Generation is now available for download to an iPad through the iTunes app store. This publication can only be viewed using iBooks 2 or later on an iPad with iOS5 or later.

The Electronic Data Methods (EDM) Forum operates on a three-year grant from the Agency for Healthcare Research and Quality (AHRQ), to facilitate learning and foster collaboration across a set of CER projects, designed to build infrastructure and methods for collecting and analyzing prospective electronic clinical data. To ensure EDM Forum activities address a full spectrum of research needs, the EDM Forum seeks to obtain perspectives from a broad array of stakeholders, by encouraging an open and ongoing dialogue on their web site.

Image of the author ABOUT Alan Carr
Alan Carr is the Associate Director, National Network of Libraries of Medicine, Pacific Southwest Region, based at UCLA.

Email author View all posts by

Contact Us

NNLM Pacific Southwest Region
10833 Le Conte Ave.
12-077 Center for the Health Sciences
Box 951798
Los Angeles, CA 90095-1798
Phone: (310) 825-2183
Email: psr-nnlm@library.ucla.edu

Stay Connected

Read the Latitudes newsletter
Join the PSR-News announcement list
Like us on Facebook
Follow us on Twitter


This project is funded by the National Library of Medicine, National Institutes of Health, Department of Health and Human Services, under Cooperative Agreement Number UG4LM012341 with the UCLA Louise M. Darling Biomedical Library.

NNLM and NETWORK OF THE NATIONAL LIBRARY OF MEDICINE are service marks of the US Department of Health and Human Services | Copyright | HHS Vulnerability Disclosure | Download PDF Reader