Rare Disease Day at NIH 2023

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Rare Disease Day takes place worldwide to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. This year, Rare Disease Day is on February 28th, 2023.

Rare Disease Day at NIH aims to raise awareness about rare diseases, the people they affect, and NIH collaborations that address scientific challenges and advance research for new treatments.

The goals of Rare Disease Day at NIH are to:

• Demonstrate the NIH commitment to helping people with rare diseases through research.
• Highlight NIH-supported rare diseases research and the development of diagnostics and treatments.
• Initiate a mutually beneficial dialogue among the rare diseases community.
• Exchange the latest rare diseases information with stakeholders to advance research and therapeutic efforts.
• Shine a spotlight on stories told by people living with a rare disease, their families and their communities.
• Bring together a broad audience including patients, patient advocates, caregivers, health care providers, researchers, trainees, students, industry representatives and government staff.

For more information about the event, visit https://ncats.nih.gov/news/events/rdd