{"id":13613,"date":"2016-02-09T09:08:43","date_gmt":"2016-02-09T17:08:43","guid":{"rendered":"http:\/\/nnlm.gov\/pnr\/dragonfly\/?p=13613"},"modified":"2026-02-03T17:10:25","modified_gmt":"2026-02-03T17:10:25","slug":"how-patients-use-social-media-upcoming-pnr-rendezvous","status":"archive","type":"post","link":"https:\/\/news.nnlm.gov\/region_5\/how-patients-use-social-media-upcoming-pnr-rendezvous\/","title":{"rendered":"How Patients Use Social Media, upcoming PNR Rendezvous"},"content":{"rendered":"<p><a href=\"\/pnr\/wp-content\/uploads\/sites\/10\/2016\/02\/media-998990_640.jpg\" rel=\"attachment wp-att-13617\"><img loading=\"lazy\" decoding=\"async\" class=\" wp-image-13617 alignleft\" src=\"\/pnr\/wp-content\/uploads\/sites\/10\/2016\/02\/media-998990_640-150x150.jpg\" alt=\"media-998990_640\" width=\"107\" height=\"107\" align=\"left\" hspace=\"#15&quot;\/\" \/><\/a>On February 17, join us for the PNR Rendezvous on How Patients Use Social Media. \u00a0Our guest presenters will be health and science journalist Sally James and patient advocate, Stacey Tinianov. Sally and Stacey\u00a0will lead you through how patients, as well as clinicians and researchers, increasingly use Twitter and Facebook to find and exchange many kinds of health information: including technical information about diseases, comparisons of treatments, as well as support for survivor issues in chronic and rare diseases. Live chats on these platforms draw thousands weekly.\u00a0 Some researchers break news about peer-reviewed journal articles first on Twitter. Other researchers are recruiting subjects directly on social media. This webinar will provide practical examples to help you explore and understand how these resources are used and how moderators &#8220;curate&#8221; and archive tweets and posts from such conversations so they remain accessible.<\/p>\n<p>We hope you can join us but if not, the session will be recorded. Check the <a href=\"http:\/\/nnlm.gov\/pnr\/training\/PNRrendezvous.html\" target=\"_blank\" rel=\"noopener noreferrer\">PNR Rendezvous<\/a> webpage a couple of days after the live session.<\/p>\n<p><strong>When:<\/strong> February 17, 1:00pm Pacific Time, Noon Alaska Time, 2:00pm Mountain Time<!--more--><\/p>\n<p><strong>How:<\/strong>\u00a0 You can participate in this free, web-based interactive session from your desk with your computer and telephone.<\/p>\n<ul>\n<li>Please click here\u00a0https:\/\/webmeeting.nih.gov\/common\/help\/en\/support\/meeting_test.htm\u00a0to test your computer prior to the meeting. The diagnostic test will prompt you if you need to update Flash, check your connection speed and install an Adobe Connect add-in. If you have problems with these steps, please call your information technology department for help.<\/li>\n<li>Go to the following website and login as a Guest, using your own name:\u00a0https:\/\/webmeeting.nih.gov\/rendezvous.<\/li>\n<li>Once in the web meeting a pop-up box allows you to put in your phone number and the program will call you. If this does not happen call the 800 number and use the participant code given in the Notes box (lower left-hand corner) on the screen.<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>On February 17, join us for the PNR Rendezvous on How Patients Use Social Media. \u00a0Our guest presenters will be health and science journalist Sally James and patient advocate, Stacey Tinianov. Sally and Stacey\u00a0will lead you through how patients, as well as clinicians and researchers, increasingly use Twitter and Facebook to find and exchange many&#8230; <a href=\"https:\/\/news.nnlm.gov\/region_5\/how-patients-use-social-media-upcoming-pnr-rendezvous\/\">Read More &raquo;<\/a><\/p>\n","protected":false},"author":22,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[9,4,8,5],"tags":[],"class_list":["post-13613","post","type-post","status-archive","format-standard","hentry","category-health-literacy","category-regional-news","category-technology","category-training-education"],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/13613","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/users\/22"}],"replies":[{"embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/comments?post=13613"}],"version-history":[{"count":2,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/13613\/revisions"}],"predecessor-version":[{"id":16983,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/13613\/revisions\/16983"}],"wp:attachment":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/media?parent=13613"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/categories?post=13613"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/tags?post=13613"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}