{"id":1551,"date":"2009-11-04T17:09:19","date_gmt":"2009-11-05T01:09:19","guid":{"rendered":"http:\/\/nnlm.gov\/pnr\/dragonfly\/?p=1551"},"modified":"2026-01-27T15:43:03","modified_gmt":"2026-01-27T15:43:03","slug":"more-about-e-patients","status":"archive","type":"post","link":"https:\/\/news.nnlm.gov\/region_5\/more-about-e-patients\/","title":{"rendered":"More About E-Patients"},"content":{"rendered":"

Hope Leman, Research Information Technologist at Good Samaritan Regional Medical Center in Corvallis, Oregon, submitted the following as a comment on our October 27 post E-Patients Rising. I am re-posting it here in order to highlight the great resources Hope suggests for learning more about the e-patient movement. Thanks Hope!
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I have been to several conferences recently: Medicine 2.0, Health 2.0, the Connected Health Symposium and e-Patient Connections Conference 2009. At each of those I was privileged to hear e-Patient Dave speak. He is a remarkably incisive thinker on these issues and his keynote at the recent Medicine 2.0 conference (provocatively entitled, \u201cGimme My Damn Data!\u201d) made a deep and positive impression on the attendees.<\/p>\n

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Dave is a key figure in this movement and he likes medical librarians! (And we like people like that.) He has helped found an important organization, the Society for Participatory Medicine:<\/p>\n

http:\/\/participatorymedicine.org\/<\/a><\/p>\n

which has just released the inaugural issue of its journal (which itself is an interesting development on the Open Access landscape):<\/p>\n

http:\/\/jopm.org\/index.php\/jpm<\/p>\n

I follow Dave on Twitter:<\/p>\n

http:\/\/twitter.com\/epatientDave<\/a><\/p>\n

and at his blog:<\/p>\n

http:\/\/epatientdave.com\/<\/a><\/p>\n

He is a great speaker. Anyone organizing a conference on medical librarianship, healthcare IT, health content, etc. should ask him to come. He is that good.<\/p>\n

The participatory medicine\/e-Patient movement is going to transform the American healthcare system in coming years, so thanks for giving us in the medical librarianship field a heads-up on it. Pew does indeed do wonderful work on these matters. I follow Pew\u2019s Susannah Fox on Twitter. She is also a superb speaker and thinker on these issues:<\/p>\n

http:\/\/twitter.com\/SusannahFox<\/a><\/p>\n

Here are some excellent resources from the analyst, Kevin Kruse (another key player and smart fellow). The video, the e-Patient Revolution is well worth viewing and can be found here:<\/p>\n

http:\/\/epatient2009.com\/<\/a><\/p>\n

and his paper, Patients Rising: How to Reach Empowered, Digital Health Consumers can be downloaded for free here:<\/p>\n

http:\/\/www.kruresearch.com\/library.php<\/p>\n

And here is an up and coming library science student, Myrna E. Morales, to keep an eye on:<\/p>\n

Tweets by seergenius<\/a>