{"id":18373,"date":"2020-03-18T22:21:14","date_gmt":"2020-03-18T22:21:14","guid":{"rendered":"https:\/\/news.nnlm.gov\/pnr\/?p=18373"},"modified":"2026-02-03T18:40:54","modified_gmt":"2026-02-03T18:40:54","slug":"dataflash-2020-rdap","status":"archive","type":"post","link":"https:\/\/news.nnlm.gov\/region_5\/dataflash-2020-rdap\/","title":{"rendered":"DataFlash: 2020 RDAP"},"content":{"rendered":"<p>This past March 2020 RDAP was hosted in Santa Fe, New Mexico.\u00a0 Unfortunately, I was not able to attend in person, but I was able to catch the conference virtually.\u00a0 The keynote speaker was incredibly informative and knowledgeable and of course, very articulate and engaging.\u00a0 For me, the highlight of the Summit was the keynote speaker.\u00a0 The conference keynote was <a href=\"https:\/\/www.aastec.net\/our-team\/staff-overview\/\">Michele Suina<\/a>, PhD (Cochiti Pueblo), Program Director, Albuquerque Area Southwest Tribal Epidemiology Center (AASTEC).<\/p>\n<p>Michele talked about her work with the <a href=\"https:\/\/www.gida-global.org\/\">Global Indigenous Data Alliance (GIDA)<\/a> which is a great organization that prides themselves on \u201cpromoting indigenous control of indigenous data\u201d around the world.\u00a0 Their data motto is \u201cBe FAIR and CARE\u201d which is a play on the popular data acronym FAIR (i.e. fair, accessible, interoperable, and reusable) and GIDA\u2019s acronym for data CARE.<\/p>\n<p>CARE is an acronym that reminds us that right because data is shared and open doesn\u2019t necessarily mean that it\u2019s tension-free for all people especially vulnerable populations like indigenous ones.\u00a0 Let\u2019s take a closer look at what CARE means.\u00a0 The \u201cC\u201d in CARE stands for \u201cCollective benefit\u201d which means that data should be used in ways that empower Indigenous People so that they can derive maximum benefit from the data\u2019s use.\u00a0 The \u201cA\u201d in CARE stands for \u201cAuthority to control\u201d which means we must recognize the rights and interests of Indigenous Peoples and their rights and interests over their data; in other words, we must respect their authority to control their own data. The \u201cR\u201d in CARE stands for \u201cResponsibility\u201d which means that we are responsible and accountable for how the data is being used to foster positive relationships with the Indigenous Peoples and that they derive the maximum benefit from their data. The \u201cE\u201d in CARE stand for \u201cEthics\u201d which means that the wellbeing of the Indigenous Peoples should always be at the heart of the data life cycle and across data ecosystems.<\/p>\n<p>As data enthusiasts we must remember that to be \u201cFAIR\u201d, we must also \u201cCARE\u201d especially with vulnerable populations like indigenous ones.<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>This past March 2020 RDAP was hosted in Santa Fe, New Mexico.\u00a0 Unfortunately, I was not able to attend in person, but I was able to catch the conference virtually.\u00a0 The keynote speaker was incredibly informative and knowledgeable and of course, very articulate and engaging.\u00a0 For me, the highlight of the Summit was the keynote&#8230; <a href=\"https:\/\/news.nnlm.gov\/region_5\/dataflash-2020-rdap\/\">Read More &raquo;<\/a><\/p>\n","protected":false},"author":2945,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_feature_clip_id":0,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_post_was_ever_published":false},"categories":[52,54,9,7,5],"tags":[240,239,181,238],"class_list":["post-18373","post","type-post","status-archive","format-standard","hentry","category-blog","category-data-science","category-health-literacy","category-public-health-2","category-training-education","tag-be-fair-and-care","tag-gida","tag-nnlm-pnr","tag-rdap"],"jetpack_sharing_enabled":true,"jetpack_featured_media_url":"","_links":{"self":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/18373","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/users\/2945"}],"replies":[{"embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/comments?post=18373"}],"version-history":[{"count":1,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/18373\/revisions"}],"predecessor-version":[{"id":18374,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/posts\/18373\/revisions\/18374"}],"wp:attachment":[{"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/media?parent=18373"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/categories?post=18373"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/news.nnlm.gov\/region_5\/wp-json\/wp\/v2\/tags?post=18373"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}