The National Institutes of Health (NIH) Launches a Crowdsourcing Project Called PregSource to Better Understand Pregnancy

Posted by nnlmscr on November 14th, 2017 Posted in: Blog, Consumer Health, Data, General (all entries), NIH

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PregSource, collects information from pregnant women to increase knowledge about pregnancy.  The research project delves into emotional, physical, labor, and delivery aspects to identify specific challenges experienced by subsets of women, to include those with physical disabilities.  The overarching goal of the research program is to form better strategies to improve maternal health care in the United States.

Participants of PregSource answer online surveys to share information about their experiences like sleep, mood, weight changes, morning sickness, and others.  According to the NIH, by collecting this data, the NIH hopes to answer the following research questions:

• How many women experience morning sickness? How long does it generally last?
• How much does pregnancy affect women’s sleep patterns? How do these patterns change over the course of the pregnancy?
• What are the patterns of weight gain during pregnancy, and how do they affect health?
• How do women with challenges, such as physical disabilities or chronic diseases, experience pregnancy and new motherhood?

Pregnant women ages 18 years and older can enroll.  Enrollment is free.  Information from participants will not be sold to third parties.  Personal information is de-identified, meaning names and addresses are removed from data collected.  The information is then shared with researchers to be used in future studies.

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