Written By: April Wright, NNLM All of Us Community Engagement Coordinator, SEA
The All of Us Research Program, grown out of the NIH Precision Medicine Initiative, aims to build one of the largest, most diverse datasets of its kind for health research and to reflect the diversity of the United States through its participants. All people living in the United States – not just citizens – are eligible to participate. The mission of All of Us is to accelerate health research and medical breakthroughs, enabling individualized prevention, treatment, and care. The goal of the program is to help researchers understand more about why people get sick or stay healthy. By looking for patterns, researchers may learn more about what affects people’s health.
The Researcher Workbench makes participant data freely available through the All of Us Research Hub. What follows is the official announcement from the All of Us Research Program.
The All of Us Research Program launched the beta phase of the Researcher Workbench today. Read the official announcement from All of Us CEO Dr. Josh Denny.
The Workbench is a new platform that contains deidentified, individual-level participant data, including electronic health records, survey answers, and physical measurements. Within the Workbench, researchers can use a suite of custom tools to create, review, and analyze cohort data. Visit the Research Hub website to learn more about our methodology for curating participant data and the Researcher Workbench tools.
During the beta phase, researchers with NIH eRA Commons accounts may apply for access if their institutions have a data use agreement in place. Right now, any U.S.-based academic, nonprofit, or health care organization can enter into our Data Use and Registration Agreement.
We released several new resources to the Research Hub website:
We extend a warm welcome to researchers interested in exploring the Researcher Workbench. We want to design this platform with you, to make it the best resource it can be. Your comments and suggestions are central to that effort. Go to ResearchAllofUs.org to find out more and get started.